I can't believe this is happening to me. Over the past week I have experienced tingling and numbness in my hands. Today the sole of my right foot is swollen, red and angry looking and have developed blister like spots. The specialist nurse told me yesterday not to have my Humira jab this week and I have just contacted her again about the spots and swelling (waiting to hear back); having read about the side effects of this drug I am now feeling pretty scared, as so far my track record for drug tolerance has not been good and I'm worried about where this will lead to.

Not been on the forum much due to the stiffness and pains in my hands, also been feeling low as my work has decided to ill health retire me, but have been thinking of you all.


love,

Barbara
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HI Barbara,

I'm so sorry to hear what you are going through at the moment, especially the ill health retirement, no wonder you are feeling down.
Your foot problem sounds very painful, I hope you hear back from the rheumy nurse soon.
I think numbness and tingling can be a side effect of humira.
I do hope you can get the problems sorted out and it turns out not to be the humira at fault because I know you have had a bad time with drugs and were hoping this is the one that works for you.
Thinking of you and sending lots of hugs.
Love, Doreen xx

So sorry to hear this Barbara - I've been wondering how you were for weeks. Have missed you on the forum but can understand why now. I hope the side effects are a temporary issue for you as I know you were really struggling with no drugs. Please let us know what happened with work when you feel up to it - you must be devastated. Will be thinking of you.

Julie

Barbara - I am wondering whether you could possibly have shingles?

Will ring tomorrow
Jeanxxxxxx

Hi Barbara,

I'm so sorry for you. It sounds like you're going through a lot of pain and discomfort.

I want to say don't lose heart, if the humira has to go, one of the others may suit you better. I hope you get some answers soon and some relief even sooner!

x x
Joanna

Thinking of you Barbara.
Hope things settle down for you soon.

Love, Doreen xx

Glad you've managed to get a couple of appointments so soon!

I developed an allergy to Infliximab just when I thought it was really working. I know how frustrating it is and it's easy to give up any hope of finding something that works but your time will come! It'll be the next one for sure

Let us know how you get on this afternoon.

Joanna

Hope all went well with the GP Barbara. Keeping everything crossed for you.

Julie

Hi all,

Well, the trip to the GP was a waste of time. Poor locum pointed out that she did not know about the drug and duly phoned the hospital, but could not get hold of the rheumy on call and stated she felt dumped upon! Guess, she was not pleased with the rheumy telling me to go to the GP and didn't know what to do, so I was sent home with the advice to go to A&E if my situations becomes any worse. However, I think unless something drastic happens I will hold out to see the rheumy on Monday.

Last night I couldn't undress myself for stiffness and pain, my eyes are now sore swollen and red, and feel dry and sticky, but apart from that nothing new has occurred

Wishing you all a good and pain free weekend,

love,

Barbara
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Hi Julie,

I've been wearing a morphine patch for the past 2 weeks, which seems to be helping. Last night was particularly bad as the patch was possibly wearing off and was due to be replaced today. Feeling a bit better and will let you know how I get on on Monday when I've seen the rheumy.

Please don't let what has happened to me cloud your opinion on anti tnf, I'm just an awkward so-and-so!! If you are not allergic to penicillin (I am) you should be OK with anti-tnfs; I believe it's something to do with an allergic reaction to similar types of proteins found in the drugs.

love,

Barbara
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